Life story drives blind lawmaker
Rep. Cyrus Habib of Kirkland is Washington state’s first blind lawmaker in decades, and his life story is in many ways reflected in the policies he’s now championing.
The Associated Press
OLYMPIA — Behind his sunglasses, state Rep. Cyrus Habib of Kirkland is reaching back in memory, trying to recall the name of another fully blind politician who came before him.
This was someone who served many years ago, Habib recalls. In the U.S. Senate. The grandfather of writer Gore Vidal. Habib rattles off a few details before surrendering: “Let me look him up.”
Turning to a laptop that provides him constant audio feedback, Habib needs just 23 seconds to launch his Internet browser, run a query and find the information he’s looking for — a biographical overview of former Oklahoma Sen. Thomas Gore.
“There’s a picture of him here from 1908,” he says. “How does he look?”
At just 31 years old, Habib has mastered skills to bypass the limitations of his disability, and that has allowed him to trace a remarkable life trajectory. At age 8, he completely lost his eyesight to cancer but nonetheless went on to become a black belt in karate, a jazz pianist, a Rhodes Scholar at Oxford, an editor of the law review at Yale and an attorney at a prestigious Seattle-based firm.
Now he’s Washington state’s first blind lawmaker in decades, representing the Eastside’s 48th District, and his life story is in many ways reflected in the policies he’s championing.
Cancer as an infant
Half jokingly, Habib says he imagines everyone still looks like Cyndi Lauper and Boy George — celebrities from the last time he was able to see.
He was just 4 months old when his parents received his cancer diagnosis. It was retinoblastoma, a rare form of cancer that affects the retina and typically strikes children. He lost sight in one eye when he was 2 and spent much of his childhood in painful medical procedures and grueling chemotherapy.
Habib’s treatment came from a range of specialists, including leading doctors at Johns Hopkins, New York Hospital and the Wills Eye Institute in Philadelphia — all largely covered by his engineer father’s medical insurance.
Now, the care he received as a child is something Habib, a Democrat, considers as the Legislature explores ways to provide medical coverage for children.
“It is unthinkable to me that there would be a child, God forbid, that would experience a life-threatening illness and not have health insurance,” he said.
Despite all the medical intervention, Habib’s vision deteriorated, and the retinoblastoma ultimately forced doctors to remove his retina at age 8. It didn’t come as a surprise to him.
And today he offers an optimist’s reflection on the loss, saying it came at perhaps an ideal age, when he was old enough to retain a strong visual archive of his surroundings but young enough to adapt.
The family soon afterward moved from Baltimore to the Bellevue area, where Habib began his new challenge of trying to live a normal life without sight.
His mother, Bellevue attorney Susan Amini, recalls the day he came home from Somerset Elementary School in the third grade and complained about his recess teacher. Fearful for his safety, the teacher wouldn’t let him on the jungle gym and instead kept him close by, away from the other kids. He wanted to be out on the gym and jumping on obstacles like his peers.
Amini went to the school and signed a waiver releasing the school of liability if her son got hurt. Then the two spent evenings and weekends learning the playground, including safe ways to navigate the jungle gym and the location of a tree stump that had sharp edges.
“When I would go pick him up, he would be the one on top of everything,” she said.
As he developed the skills to cope, Habib received a variety of training, and he makes sure to note where.
He learned to use a walking cane from the Washington State Department of Services for the Blind. Borrowing books from the Washington Talking Book & Braille Library helped him master reading. He learned how to use text-to-speech software through training at the Washington State School for the Blind.
Without those state-supported opportunities, Habib says, he couldn’t have gone from “Braille to Yale.”
Now, as state lawmakers look to find money to pay for basic education, one proposed place to get extra cash is to cut social services. Habib said he rejects the premise that education and social services are competing interests. In fact, he said, they work together.
“I get very worried because my own biography leads me to believe that, especially for those children whose challenges are most pressing, social services are often what make the critical difference,” Habib said.
At a recent hearing of the House Technology and Economic Development committee, lawmakers rapidly moved through a series of bills. Each had extensive written summaries and some included dense amendments.
One was a major tax-incentive initiative Habib proposed.
In his seat on the committee, where Habib serves as vice chairman, he sometimes leaned over to whisper to colleagues. Occasionally, fellow Rep. Gael Tarleton, D-Seattle, guided his hand to the right spot on sheets of paper where official votes get recorded. But mostly, Habib was on his own, with his sunglasses on, laptop open in front of him and a small earbud in one ear.
His text-to-speech software chirps at him in an almost indecipherable way, moving so quickly that an untrained ear can catch only parts of what the computer is saying. But Habib has no trouble keeping pace.
The software helps him to handle the massive volumes of reading required of lawmakers, allowing him to rapidly skim through even the lengthiest bills and keep abreast of changes in their wording. In his ear, the voice changes in pitch when encountering things like words that have been selected for elimination under a proposed law.
Habib is apparently the first blind lawmaker in the Legislature in more than 50 years, when Francis Pearson was representing Southwest Washington.
Even though Habib is a freshman, he has stood out. He was named vice chairman of the Technology and Economic Development committee because of his expertise on legal issues in that sector. At the Seattle law firm Perkins Coie, he focused on startup technology companies.
One of his first proposals this year was a plan to create a $1 million annual business-tax deduction for startup ventures, targeting high-tech and manufacturing industries that may be poised for long-term job growth.
Republican Rep. Norma Smith, of Clinton, Island County, said she has been working over the years to develop ways to spur such economic growth. When Habib came into the Legislature with similar ideas, she noted, he quickly reached out to colleagues to get input and develop a plan.
Habib’s bill passed out of committee with bipartisan support.
While Habib sometimes uses his walking cane around the Capitol, he often shuttles from hearings to the House floor hooked to the arm of a staff member or colleague — sometimes a Republican. He said it was one of the misunderstood benefits of his blindness, allowing people of different perspectives to come together and discuss issues.
“I take the opportunity to walk with them,” Habib said. “That creates a bond and reminds us that we’re really all going to the same place.”